brightlotusmoon: (Asha)
So, my thoughts have been spinning merrily amidst what could be a spiraling episode of... Oh, fuck, probably everything at once. After I had a chat with three doctors about the consequences of stress-related memory loss, I quietly decided to start a private mindfulness therapy, which I have only been sharing with the psychologist, for advice, while I move forward in my own brain to stop my own brain from destroying my mindstate.

Tomorrow, I see my general physician and have her write a referral for the local hyperbaric oxygen therapy center. Although it's a bit premature, as they have yet to call me back about an initial consultation. While I was filling out their online New Patient form, I started wondering if they would even take someone like me, with two dozen illness. Even though cerebral palsy is the cornerstone. I just feel so excited about it. That's a good thing. I can still most of my emotion things.

What I find beautiful and fascinating about my private therapy protocol is that almost nobody believes me. I have been stuck in something insane since 2010. Why would they believe I would "get better" now, so many years later after therapy and medications and meditative exercises? Then again, none of them have been in long term therapy or medication. It really does take many years to spur a change this massive. Hence the secret protocol, which includes a possible medication update and potential oxygen therapy.

I don't expect anyone to believe me. I don't expect anyone to believe in my desire to change with this therapy protocol. How could they? Why would they? I am the same as I was when symptoms started. But I don't want their belief. I don't really want support if there is no actual active knowledge. How can you say "Hey, I've been there, I get it, fist bump in solidarity" unless you really have gone through a similar structure of treatment repeatedly for a grab bag of illnesses that mindfuck you for no reason?
Actual legitimate question, BTW.
If you're also a parent of someone with interconnected psychiatric and neurological disorders, I would love input, because when I try to explain these things to my mom who only has hereditary ADHD controlled via lifestyle, my emotion-brain starts shutting down so my technical-brain can word at her, and I know she wants less science and more human. I'm trying. I just cannot get past that very protective mental guardian who shields emotion-Joanna from Outside. And oh, as much as I love Serena, she feels it is easier and gentler to let me sleep while she and Koan the calico kitten organize and compartmentalize all the Me. Ananta works hard enough balancing out all the neuroweird that Alicia in my private epileptic Wonderland can't reach. I haven't had much success in psychically merging with Asha. We are working out my dissociative and depersonalization episodes first.

I will do this. It will happen. Steps have been severely taken. Hard to talk. But if you think you get it, I would love a discussion via Private Message. I am willing to reveal bits and pieces of my Rebuild Joanna Brain Project to acquire tips and advice from those who get it.

Now, see, I view many people as family beyond my blood family - who shall remain the besy family I would want. Various people in my social circle - friends plus family - have always stood with me. I will always need and want that. But for those who are truly normal and looking at me with confusion, puzzlement, exasperation, fear, anger... and the type of condesencing that means pats on the head, chuckling, and "I love you sweetie. Of course you'll change." "You do nothing. You never help. You are too self absorbed, you don't think, you claim memory loss. It is all right, dear. We are used to hit. Just finish writing." Followed by another hair tousle. I'm used to it. It's routine because I am me.
I am not out to prove them wrong, not entirely. I am out to prove to myself that my neuroplasticity really might eradicate the worst of the annoying symptoms.
Maybe this whole autistic ramble came from my hope and excitement over this slow gentle therapeutic process. If loved ones want me to speed it up, I can turn away for a while to meditate.

All I know is that my own husband has been putting up with me forever, and that says something huge.

Love you, LJ family.
brightlotusmoon: (Snow White Blood Red Light Pale)
bluelotusglow

bluedarklotus

bluelotus4

***
You lift your head to ask if this is a dream. She presses her finger to your lips and smiles. As she gently places the shining blossom into your outstretched hands, she whispers, "This will be safe inside you. Together, you will understand." You want to ask her everything, but you know you mustn't. She kisses your lips and stands tall. Raising her arms, she fades slowly. The air is filled with the scent of the sacred lotus. You press the flower to your breast and it vanishes, sinking inside you. And you begin to understand.
***
You find her in the swamp itself. This time she is wearing faded denim shorts and a sleeveless top, muscled abdomen and arms well exposed, bronze skin glistening. She is knee deep in muddy water, examining each blossom with careful fingers. She looks up at you with bright green eyes and smiles widely. Her hair is blacker than the darkest muddy water, tied back with satin. She looks so young and so old.
"Are you here for another one?" she asks. "Never mind, of course you are. Hold on. I need to find yours." She moves slowly, dipping her hands in up to the wrists until her skin is masked in mud.
"They're sleepy today," she says. "Here, talk. Ask which one wants you and I'll take it."
"Do I have to come into the mud?" you ask, preparing to remove your shoes.
"No, no, just call out. They'll hear you even far away."
You take a deep breath, focus on the flowers floating all around the woman, and say, "Dear blossom, come to me." You aren't sure if that will work. But then the woman nods. She tilts her head one way and the other. She turns around and walks a foot, then slowly bends at the knees and carefully scoops up a richly pink lotus that looks exactly like all the others. She whispers something, and the flower begins to glow. Grinning, the woman walks out of the swamp and holds out the flower. "Perfect!" she says. "Instant connection. Good job."
You cup your hands and she slides your lotus into your hands. There is a small amount of mud; it feels cool and refreshing, with a slight tingling. The lotus shines so brightly that you need to squint, and it disappears into your hands, under your skin.
You blink at the woman. "So that's it?"
She smiles. "Nope. Never. But you're learning more as you go. I'll see you when you're ready to come back. You'll know where I'll be."
You want to ask something, something important. You have forgotten. You just feel blissful. You reach out, and she hugs you tightly, burying her face in your hair. You rest your chin on her shoulder. She smells like lotus and frankincense and pure joy.
"I'll come home soon," you murmur. She just nods. Nothing else needs to be said.
***
The lotus flowers are in full bloom, all of them. You stand naked and waist deep in the swamp, surrounded. The blossoms and glowing gently, swimming around you. Your guide is nowhere. You cannot call out, or speak, or even whisper. You draw in a breath. A small pink petal floats on the air toward you and presses itself on your tongue. No, you think. I must not speak. You are crowded by flowers. Instinct speaks, and you fall back until the lotus flowers catch you. You are floating on a shining bed of full lotus blossoms. You are covered in tingling mud. You open your mouth and light streams from it. A single whole flower lifts and slowly flies to you and settles gently in your mouth. You breathe in very slowly, and the lotus becomes pure energy that pours down your throat like a refreshing drink. You close your eyes. Everything makes sense. You are everywhere. You begin to laugh, but you do not know if it is in your mind or through your mouth.
"There you go!" says a familiar golden voice. "How do you feel now?" You open your eyes. You cannot stop laughing like a child. The Lotus Woman has eyes that cycle through every shade of green, and you find it fascinating. She reaches for you, and you reach for her. She scoops you up and carries you to a heated rock beyond the swamp. There are clothes waiting for you, folded on another rock. The Lotus Woman helps you sit up. She produces a wood brush and slowly combs your hair, letting the bright, bright sun dry the muddy water away. She carefully rubs you down with a towel that feels like silk and cotton. You look at her, finally, and notice that now she is wearing a red sundress that moves like water, with boots polished like mirrors.
She finishes smoothing you down and helps you into undergarments, blue slacks, a red tee shirt, and boots similar to hers.
"We're going to the healing room," she says, "if you'd like. There will be oil massage and saunas and showers of all kinds. Now that you have your next lotus, I think you'll appreciate the new magic."
You just feel so much bliss, so much joy, so much euphoria, that you only nod and smile widely. She taps her finger on your nose. "Now, don't get excited. That'll fade. We need to make sure it doesn't overwhelm you. It's supposed to become part of you, remember?"
Licking your lips and taking a deep breath, you say, "Yes. I'll remember." Your voice sounds like small bells inside your head.
You hold the Lotus Woman's hand and shield your eyes from the sun with your other hand. She is leading you far from the swamp, but it is all right. You will be back soon, of course.
***
It is the way she looks at you, with that quirky smile and those gleaming dark green eyes.
You hold out your cupped hands, trying not to tremble, trying not to disturb the velvety white lotus nestled against your fingers.
"Is this your gift to me?" she asks.
"Yes," you say. "You have helped me so much... and I know you always have these, but I found this one right where I live, and, I mean, I know they're so rare, but..."
She holds up a hand, smiling so widely. "It's okay, sweetheart. I understand." She very carefully takes the lotus from you, holds it to her lips, and kisses the petals. "Thank you. It's perfect."
"Maybe... maybe tomorrow," you say shakily, "we can go to the swamp and... you know... talk to the other flowers?"
She tilts her head and her eyes fill with compassion. "Oh, darling," she murmurs. "Don't be so nervous. There's no need to be shy. This is your world. We will do anything you wish."
You nod, your throat thick with tears. You have no idea what to say next. You realize you don't need to say a word. You watch as she holds your white lotus gift to her breast, and you watch as the lotus turns into golden light, and you watch as the lotus melts into her bronze skin, and you watch as she draws a deep deep breath, exhaling into the sky. Suddenly, you feel a massive weight lifted, spiraling away from the top of your head. Energy fills you starting at your feet and moving in a rush until it reaches the same top of your head. You feel absolute and complete ecstasy, euphoria, tranquility, and serenity. You draw a deep deep breath, exhaling into the sky. You want to laugh, so you laugh. And she laughs with you.
You feel how deeply the universe lives inside you. You laugh, and you embrace everything you can reach, until you feel yourself glowing. You dance and dance, and she takes your hands and joins you, and the universe dances with you.
***
This time, you are standing ankle-deep in a swamp at midnight. Everything is glowing blue - the sky, the water, the lotus flowers, your skin.
The Lotus Woman is sitting in front of you, cross-legged, surrounded by blue and white lotus blossoms all in full bloom. Her bronze skin, her black hair, her green eyes... everything about her is shining with pale blue light.
You feel comforted and serene in a way you have never known at such a deep level. You carefully sit down in the same position, letting the mud flow against you. You and she are both dressed in shorts and sleeveless tops, no shoes, your hair both unbound. The mud sinks effortlessly into your skin.
Neither of you speak. After a few minutes, one lotus blossom floats into your lap, white and blue and covered in dew drops. You very gently pick it up and it dissolves into your skin with an intense burst of blue and white light.
She grins and laughs, clapping her hands. "Oh, yay! I was hoping you would get that one. It's been waiting for you."
You smile and shrug. "I guess I've been waiting too."
The dozens of flowers float and spin around you both, several touching your skin and her skin, merging with you in tiny light bursts that feel like soft winds. She holds out her hands and you reach out and you grasp them tightly.
You don't know how long you sit and meditate, but it doesn't matter. Forever can fit inside a single moment, after all.
The white and blue lotus blossoms swirl around you, lifting your soul, until the entire world is filled with light, and you feel completely at peace, bursting with serenity.
***
brightlotusmoon: (Snow White Blood Red Dragon Witch)
http://naamah-darling.livejournal.com/623299.html
Seriously, you guys. Seriously. *points* This woman. This woman is awesome. She is AMAZING. All her custom ponies are amazing; they are fantastic, they are extraordinary.
But I think she and I can both say with total confident honesty that Serenity is the best. (Okay, the best so far. But still.) And Serenity belongs to ME, because this woman made her JUST FOR ME. As a special gift.
And she knew she was doing it even before I told her I was considering requesting a custom since they are pricey and I wanted to save up money. And there she was smirking and giggling smugly because I had no idea, and then I got Serenity in the mail and I cried and sobbed so hard because the happiness and joy was overwhelming.
And now Serenity is literally imbued with my magic, and I love her more than any toy I have received in my adult life...
And seriously, people, you should seriously consider Namaah's ponies. She is absolutely incredible.
But Serenity is still the best. Truth. *nods*
https://www.facebook.com/media/set/?set=a.10151406320840684.1073741827.640545683&type=1

And still, whenever I feel anxious and upset and depressed, I just touch the lotus bud symbol on her forehead, and I actually honestly feel better.

Edited to add:

Serenity the pony called to me, so decided to take a photo to show how much I adore her.

I have not loved a toy so much since I was a teenager. I cannot thank [livejournal.com profile] naamah_darling enough for creating and naming this pony just for me. This may be one of the most perfect toy gifts I have gotten in my adult life.

Serenity has been charged and imbued with as much personal magic energies as I could give her. She is now a method of helping me work with physical, emotional, and psychic self stimming in a weird way.
I talk to her during episodes of anxiety and depression; I kiss the lotus bud blaze on her forehead when I say goodnight. I brush her hair with wood combs and boar brushes. It relaxes me.

She soothes my brain and centers my mind in ways I cannot explain. She is a toy, custom made... but she is special beyond description.





It doesn't matter how old or young you are. There will always be some sort of toy or physical object that represents something important, something life-like or abstract or surreal, that you bond to deeply.
brightlotusmoon: (Snow White Blood Red Dragon Witch)
So, a couple of months ago, I was chatting with [livejournal.com profile] naamah_darling about her fabulous custom made My Little Pony dolls, which she paints herself with her own designs and even new hair. She sells them on Ebay for reasonably understandably high prices, because they are really extraordinary and unique.
I casually mentioned that one day, when I could afford it, I'd love a custom pony for myself. The matter was dropped.
And then a week or so ago, on Facebook, Naamah mentioned on Facebook that she was sending me a package. Since I've been sending her care packages full of skin care and supplements, I figured it was something similar, like a thank you. I didn't realize how anxious and excited she seemed about my receiving the package.

A couple of days ago, the box arrived. I opened it up and found the card first, with a glittery dragonfly on the cover. I opened it and on the left it read:

"Funny you should talk about a custom..."
And my heart kind of skipped.
And on the right it read:
"It took me a while to figure out her name, but it turned out to be so simple once she told me.
Serenity.
I made her thinking of you start to finish. She's all yours. She'll be a friend who can always be there for you and remind you that you are never alone.
Hope you love her. <3"

And even before I pulled away the paper wrappings, I was crying. And when I had the pony in my hands, and I saw her flank symbol, I cried even harder, murmuring "Oh my gods, oh my gods, she did this for me, she made this for me, oh my gods, this is amazing, this is so beautiful, oh oh oh..."

Because I had seen a photo, on Naamah's Livejournal, months ago, of this pony being painted, and I had instantly been pulled toward it, wishing it could be mine...
And here she is.
Meet Serenity.
https://www.facebook.com/media/set/?set=a.10151406320840684.1073741827.640545683&type=1

Every morning, I look directly at her when I wake up, and she makes me smile. It is a wonderful, beautiful thing. Honestly, I don't think I can express it in words. Just... incredible. Love you, Naamah.
brightlotusmoon: (Default)
Oh my darker gods, this ridiculous: It now hurts to brush my hair. Like, the muscles and nerves in my arms and hands are burning and aching and spasming. No fair. It isn't right.

Brushing my hair is one of the few major happy endorphin rushing happy pleasures I have. I hate this. I may just have to put this on record and pretend that brushing my damn hair counts as a therapy workout or something.

Happy thoughts, positive emotions, birds singing, uilleann pipes and violins playing, dancing in meadows, floating on a giant lotus in a calm lake...

I am so sorry, you guys. I don't want to keep talking about this. I really do want all my posts to be like sunshine and soft cool breezes and decadent chocolate and playful kittens and bunnies. But I need to make records of everything. Even on Facebook. It does matter. I will make sure my next post is happier., even if I am sad. I don't want to be sad, or in pain, or exhausted, or any of this. I do my best, and everybody tells me what I should try, and sometimes it works and sometimes it doesn't work, and I am so grateful. One day, things will be okay, no matter what.
No matter what.
brightlotusmoon: (Default)
http://www.youtube.com/watch?v=v-4ujXtroI8

I feel much, much better.
All is again right with the world.
Forget the little annoyances.

I got to hear Nathan Fillion say, "Kaylee, find that kid who's takin' a dirt nap with baby Jesus. We need a hood ornament."

(it really does not take much to make me laugh...)

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