brightlotusmoon: (Asha)
brightlotusmoon ([personal profile] brightlotusmoon) wrote2014-04-01 06:00 pm

Because sometimes allodynia, too

Quoting an article about cerebral palsy and sex, particularly kinky sex:

"Old Pain I’m used to: the tightness in my hips when I don’t stretch in the morning, the pressure where my legs meet my back when I walk too far. It’s not that I don’t feel it; it’s just been there for so long that I know not to get nervous about it anymore. New Pain is where it gets scary because it stops having a name. I can’t immediately catalog it or diagnose it as benign. At best, disability allows you to create a tenuous peace with your body, and anytime it decides to violate that mutual agreement can be terrifying. You take the time to figure it out — what it likes and dislikes, where it functions best — and stick to that routine, until New Pain reminds you that you’re never quite going to have this figured out."

I'm a wimp with any kind of pain. But yes, Old Pain, I'm very used to Old Pain. I'm not good with pain. But, well, Old Pain is a whiny annoying thing that you deal with every day because you have to.

My favorite way to engage in personal physical stuff - not just sex - while having cerebral palsy: Communicating. A lot. Trusting. Being aware. Sharing the understanding that I can do this but can't do that, I can do this but it would be cumbersome and difficult, that I can do that but it would require compensation, modification, and help.
That's just life, though, really. But with disabilities, it becomes conscious and essential every single time.