Nov. 7th, 2010

Augh

Nov. 7th, 2010 12:23 pm
brightlotusmoon: (Default)
I always feel surprised when research on cerebral palsy rarely ever shows what happens after the children grow up.I should stop feeling surprised. Nobody ever really explained to me what would happen when I reached adulthood. All I remember was being told by doctors and therapists, "Just work on your motor skills and balance issues and you should be fine. You're only a mild case. Nothing bad will happen. At least you have good physical and mental abilities."
Hah.
I don't remember if any doctor or therapist really took the time to work with me on future complications. So here I am, in my thirties, pounding the cyber-pavement looking for ways to understand exactly how the world affects an adult female with mild spastic-ataxic cerebral palsy. A hundred different ways, a hundred different answers. That's familiar enough - just like when you ask ten pagans what paganism means, you get twenty different answers.

The cold weather this time around is hurting me in deeper ways than last season. Everything is more spastic, more hypertonic, more ataxic, more sensitive, more twitchy, more disordered. My own skin feels uncomfortable some days. Anyone who tries to simplify fibromyalgia as nothing more than a pain disorder is getting laughed at by me. A lot.
brightlotusmoon: (Default)
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I can't answer this, because no one book will please everyone.
Every single person is different, unique, complex, complicated, and weird, with varying tastes. My own favorite book changes constantly, so I can't answer that either. And considering all the genres of literature, all the tropes and storylines, assuming that you can choose one single book that you believe everyone in the world would want to read, let alone like, is kind of reaching. I understand the idea behind the question, but I flinch when someone insists that I must do something just because they think it's awesome.

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