Apr. 1st, 2014

brightlotusmoon: (Asha)
What she said:
http://palsycorn.livejournal.com/2028.html

As I've said, I am vehemently against the organization Autism Speaks and I actively want to help take them down, or at least replace the entire board. The fact that they treat autistic people with abuse and neglect, have no active autistics on the board, compare autism to deadly diseases, and spend more on advertisement and on themselves than on helpful programs, makes me believe that they not only refuse to understand autism, but hate autism openly. To me, it doesn't matter how many nice things they have done for some families. They've done more harm than good, as proven through the links provided in my friend's post. As an autistic adult myself, I am insulted and offended by Autism Speak's attempts to "help the autistic" by wanting to eradicate autism, which is literally impossible and reminds me almost of a eugenics program. Neurological conditions that are wired into the entire brain ARE the brain. And hey, plenty of autists love who we are and wouldn't want a "cure" anyway. I know there are many autists of every age who would rather not be autistic, and I understand. I'm just not one of them. If you support Autism Speaks, I won't make you stop, because that's entirely your choice. I just need to get my views out there.
brightlotusmoon: (Asha)
Quoting an article about cerebral palsy and sex, particularly kinky sex:

"Old Pain I’m used to: the tightness in my hips when I don’t stretch in the morning, the pressure where my legs meet my back when I walk too far. It’s not that I don’t feel it; it’s just been there for so long that I know not to get nervous about it anymore. New Pain is where it gets scary because it stops having a name. I can’t immediately catalog it or diagnose it as benign. At best, disability allows you to create a tenuous peace with your body, and anytime it decides to violate that mutual agreement can be terrifying. You take the time to figure it out — what it likes and dislikes, where it functions best — and stick to that routine, until New Pain reminds you that you’re never quite going to have this figured out."

I'm a wimp with any kind of pain. But yes, Old Pain, I'm very used to Old Pain. I'm not good with pain. But, well, Old Pain is a whiny annoying thing that you deal with every day because you have to.

My favorite way to engage in personal physical stuff - not just sex - while having cerebral palsy: Communicating. A lot. Trusting. Being aware. Sharing the understanding that I can do this but can't do that, I can do this but it would be cumbersome and difficult, that I can do that but it would require compensation, modification, and help.
That's just life, though, really. But with disabilities, it becomes conscious and essential every single time.

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