Et tu, ribcage?

[brightlotusmoon]

My chest hurts.
(No, it does not feel like heart pain.)
Someone suggested costochondritis. I don't want to think about cartilage inflammation. But it is a common syndrome attached to fibromyalgia; the majority of people with fibromyalgia will develop it. I don't think I have it. But I do need to see my doctor soon, so I will ask to be checked out.
http://www.geocities.com/lynndebeal/CostoPain.html <-- I love this webpage, it makes me smile.

NOTE: The following bit of venting is not aimed at any of you. It is aimed at me, myself, only.
Also, I am tired of this. I am tired of feeling as though I walk on eggshells with myself: Oh, she's complaining about pain again, what is it this time? I bitch at myself. Just take X drug, it's been FDA approved just for fibromyalgia! So has Y drug! The FDA is always right and knows what's best! (Sarcasm there.) Yes, and before those drugs were official, they were prescribed off-label, just like the drug I am taking now. How about that? Mm, I will stick with what my physician, neurologist, and rheumatologist prescribed. Those drugs have worked great so far (no, really, they have). Do yoga! Do this kind, that kind, this position, that position, it'll totally help! Not always. There are times when I can barely raise my arms and bend my knees simultaneously. I do yoga stretches when I am able. I take my prescriptions, I take certain supplements, I massage with certain oils.
I do my very very very best to do everything I possibly can. I have tried, I really have. And the bitch of it all is that fibromyalgia does not care. It does not care at all. It laughs at me. It moves, it migrates, it dances, it stabs, it burns, it tries to destroy. All I can do is chase it around my body and throw pain relief at it until it shuts up and fades for a while. And I hope that while is a long while, which it usually is not.
Pile that on top of cerebral palsy, epilepsy, sciatica, lordosis, migraines, asthma, Raynaud's, and sensory integration disorder, and, well.
And, well.
That is all.
I do not know what else to say.
I am very tired.

I should go to bed now. My husband will be home in a few hours. He has been in New York City since Monday, setting up computers and equipment for a job, and when I spoke to him a few minutes ago, he was waiting on a pizza so he could bring home a piece of my old home for me. That does make me feel better.

Comments

[sidheblessed.livejournal.com]

*hugs*

[mskauri.livejournal.com]

gentle hugs! Oh, can I relate. Enjoy the pizza!

[walksbeauty.livejournal.com]

Certainly the 'shoulds' in life just get so weighty and add stress where stress is not needed. We have a rule here that if there's a 'should' as in "I *should* wash the floor" we don't get to do it right then. "So you're *shoulding* all over yourself again?!"

Your self care regimen is good... some day will be better than others, other days need more gentleness for yourself. I'm working on this, too, and empathize daily for you & the discomfort levels you deal with. big hugs....

Hope your pizza was yum!

[lovefromgirl.livejournal.com]

Just take X drug, it's been FDA approved just for fibromyalgia! So has Y drug! The FDA is always right and knows what's best! (Sarcasm there.)

One reason I am trying to be polite as frak when people say "CFIDS? Oh, try an SSRI." Um, tweaking dosage w.r.t. the one I'm on does bad enough things to my head. I'll find alternative therapies, thanks.

Your list of comorbidities makes medication of any kind a calculated risk at best, I should think. You seem to have a care team that really does know how to manage things. (Insert mild envy...) Trust 'em, lovely.

♥ you.

[brightlotusmoon.livejournal.com]

SSRI? For CFIDS? Really? *facepalm*

Thanks! After reading so many horror stories from patients with epilepsy, fibro, CP, diabetes, etc etc... I find myself profoundly grateful to be able to work with doctors who really care and really listen and want to understand

How do you make the heart? I want make the heart back at you.

[lovefromgirl.livejournal.com]

Believe it or not, that's what I've heard. I'm considering augmenting my SSRI with Wellbutrin because of *cough* bedroom issues, but if it helps... well, it won't frak with my serotonin, at least.

The heart is & hearts ; but without the spaces. Like so ♥

[brightlotusmoon.livejournal.com]

Doesn't Wellbutrin cause bedroom problems?

Oh, like this? &hearts

[lovefromgirl.livejournal.com]

With a ; on the end, sweetness. [eta: Huh. For some reason, the semi-colon didn't show in my comment notification. You've got it!]

Wellbutrin actually alleviates them. :-)

[brightlotusmoon.livejournal.com]

Huh! I could've sworn Wellbutrin does the opposite. Well, that is very good to know!

I've recommended Ashwagandha to friends who didn't want to take prescriptions to boost their libidos, and it seemed to work. One friend gave some to her dad, who was experiencing erectile dysfunction, and it actually worked for him. I was stunned.

♥

[quicksilver555.livejournal.com]

goodness!thats alot on your plate to deal with.im not a stranger to heath issues(epilepsy,depression,opiate addiction,human suffering)but shurley you have alot to deal with and I am wishing you the best.hope you feel better and I wish I could help you more since your such a nice and interesting person and one of my favorite pals on here!

please take care of yourself.you'll be in my thoughts.

your husband has been in NYC.I was just writing about how I wanted to take a group trip there one day!if it ever comes true,I will send you and your husband tickets to come on an NYC adventure!

feel better,stay well and I will send you good healing energy.

[brightlotusmoon.livejournal.com]

Aww, thank you, sweetie. This made me smile.

NYC is my home, at heart. I was born in Brooklyn and raised within the city. It will never leave my soul.

[emmapoe.livejournal.com]

I am sorry for your suffering. I know how much it sucks.