brightlotusmoon: (Asha)

Good things.
The personal therapy protocol is juuust starting to work. Slowly and softly. The doctors said slipping off is natural. But my slips are fewer. I think the new drug is working much faster than expected. No terrible side effects after all between dry mouth and that tingly sensation that the world is shiny shiny shiny. But I can already feel those most compulsive thoughts starting to be quiet.

Now, if I could just not be badgered by acquaintances who want me to be better now now now. Yes, this has had me in its psychiatric grip for over four years. It takes tiiime to get the ideal treatment. Yaaaaugh, leave me alone. You don't know. You are not inside my neurology.
Repeat. Rinse.
Those of you who get it, you get it.

So much meditation. It is in my dreams. I am ready to work myself through and beyond. Shut up about it taking all these years. Damaged braining is hard.

I make it hard for people to love me well enough to help. Which is why I need to do this on my own.

/venting ranty ramble

brightlotusmoon: (Snow White Ruby Blood Dragon Witch Light)
Oh! Oh! I forgot! I'd promised a few people here that I would let them know how I was doing with super high doses of pure Omega-3, particularly DHA. As it turns out, calamari oil is much better than krill. And so, I've been taking calamari oil, which contains 500 mg DHA, and 125 mg EPA, which I think is the highest one can go so far.
https://www.swansonvitamins.com/swanson-efas-super-dha-500-from-calamari-30-sgels
It's officially been one month, so I think it is okay to report my findings so far: I feel as though my brain is, for lack of a better term, nourished. My concentration has gotten easier. I had been considering going back on an ADHD drug for ADD-Inattentive, but the Calamari Oil seems to do what Strattera did all those years ago. Neurologically, I feel, well, hmmm... padded? This is so hard to explain! Neuromuscular issues seem slightly easier. Like, I am starting to unconsciously use my left hand more often for "simple" tasks like pouring liquid, picking up small objects. I can't insert and turn a key in a lock, and I can't squeeze any exercise equipment, but the little tiny compensated things are starting to feel smoother. Does that make sense? It really does feel like a kind of CNS nourishment.
I'm including the link to the product I'm currently taking. There is another brand via Vitacost, called Doctor's best, that offers the same dosage at different prices with different pill counts, but this is what I'm using. I even punctured a capsule to see how my cats would like it. Luna and Calliope seem intrigued. I may just brush it into Jupiter's fur, since he has dry skin.
There have been some studies showing that some brain injuries can be partially treated with extremely high doses of pure omega-3, so I'm happy to make myself a self-advocate subject. I don't know what this will mean for my CP as a whole, and I am not expecting nor hoping that anything major will happen. But I do like this feeling that my neuromuscular issues might ease up just enough to let my hemiplegia become less spastic...
brightlotusmoon: (Snow White Ruby Blood Dragon Witch Light)
Back pain back pain back pain backpain backpain backpain NNNGGHH.
It's the lumbar area, leading to sciatica down both legs. Of course, you know? I've got an appointment with my new orthopedist on January sixth, and we're going to get be fitted for true customized orthotics... although I am going to insist they be cushioned, if not highly comfortable. The ones I had as a teenager actually made my feet hurt whilst walking. I still have the left one from those days. It is not comfortable. I understand practicality and function, but still.
Nnngh. Back, hips, legs, knees, ankles. Come on, drugs, work faster.

When we came home from grocery shopping, I looked up at the stairs and whispered, "Mama's home, Rose." I had meant it merely for her memory, for her spirit that now lived in the house, free to leave the clay statue that was a vessel, as Adam had not bound her to it. Adam said, "She's still gone, sweetheart." And I knew, and I reminded him that it was just... oh, I couldn't even find the words. It was just for her ghost. But he knew. We held each other and he knew.

My friends have cried for me, I think, more than I've cried for myself. I will have pockets of moments in which I will break down in gasping sobs, but they are so quick and triggered. A brush that had moved through her fur while I was comforting her in her lethargy, before I understood what was really happening, tufts of fur clinging to the bristles that I may not remove for a while. My pillow, and the soft bean-bag type pillow behind it that served as a general cat pillow but which was generally used by Rose especially in the mornings. A bag of Greenies treats that I realized I no longer had to move to a high place where Rose couldn't grab it and tear into it. Sitting in this desk chair, now, and knowing that Rose will never jump onto my lap and rub her cheeks over my mouth. She will not curl up on the floor, waiting for me to announce that Mama is going to bed so she can lead me there and see me to sleep. Oh. Yes, I'm in tears now. Oh, babygirl. Luna is on my lap now, kissing me, nuzzling. In her own Luna way.

We will be adopting another cat. Yes. It may be sooner than anyone thinks. I've already dreamed of her. I've already named her. I already know her age range. But... you know, someones through the grief and the numbness and the deep deep shock and the horror of physical death, we know deep deep inside that even if it takes only a week or two to get another pet, it is nothing like a replacement. It just means that the throbbing empty hollow burning in our hearts might start to heal, just a little. Luna is still my heart and soul, my queen and my moon goddess, my precious love. Jupiter is still my beautiful big boy, my chatty feline child who brightens my day just by smiling. The new kitten, the new young cat, will never be Rose. She will be herself.
Rose is never coming back, not even in a new incarnation. I'm not even sure I want that; it might hurt too deeply. Rose herself was already the reincarnation of Adam's patchwork dog, Ralph. Rose spent five glorious years learning to love and be loved. In Buddhism, that is a vital thing. All animals understand this. It is slightly Jainist. Adam and I, in our eclectic paganism, are mildly Buddhist in various, often conflicting, ways. It is not possible for us to be fully Buddhist in any way, but eclecticism is a wide arena.

"Life is a journey.
Death is a return to earth.
The universe is like an inn.
The passing years are like dust.
Regard this phantom world
As a star at dawn, a bubble in a stream,
A flash of lightning in a summer cloud,
A flickering lamp - a phantom - and a dream"
brightlotusmoon: (Snow White Blood Red Dragon Witch)
A repost of something from last year that I'll need to update:

The full list of prescription drugs and supplement pills.
I do not take all the supplement pills every day; the list is only to remember the ones I have taken in the last year, which is why the list is so long.

Prescriptions:
Ogestrel-Hi
Trileptal
Zoloft
Baclofen
Klonopin
Soma
Ultram
Albuterol


Supplements:
MSM
Hyaluronic Acid
Vinpocetine
Magnesium Citrate
Apple Pectin
Glucomannan
Bamboo Silica
Chlorella
Triphala
Ashwagandha
Neem
Shilajit
CoQ10
Alfalfa
Passion Flower
Valerian
Inositol
Biotin
Proteolytic Enzymes
Yerba Mate
Cayenne Extract
Resveratrol
Turmeric
Royal Jelly
Oregano Oil
Kava
Chromium Picolinate
Mangosteen
Goji Berry
Noni Berry
Cinnamon
Guarana
B-Complex
Ascorbic Acid
Vitamin D
N-Acetyl-Cysteine
L-Tyrosine
Cat's Claw
Devil's Claw
Pau D'Arco
Sea Buckthorn
Goji
Noni
Mangosteen
Moringa
Magnolia Bark
Raspberry Ketones
African Mango
brightlotusmoon: (Snow White Blood Red Light Pale)
I stretched the hell out of my back and legs and arms. It was lovely. I did it my way. I am very pleased and very satisfied. I won't discuss the various burning barbed wire pains that are distracting me even through the codeine, but I will talk about the beautiful meditative exercises I've been working with. Peaceful, serene, tranquil, calm, relaxing, refreshing, fantastic in multiple ways. The scene always changes, but always appears Zen in some way.
I had mentioned that my human coping mechanisms, my spirit guardians, had begun communicating with each other deep in my brain without my conscious knowledge, which leads me to believe that parts of my brain are starting to come together as part of the story, as my unlimited imagination and writerbrain is starting working on a whole new, amazingly unique, private story all on its own. No wonder I have been working on Amber's story beyond these bits of my brain. Amber has also given me free reign to write her as a fully developed character and not just a created coping mechanism.
In general, I am just... very happy.
And the funny thing is that I am in a depressive episode. I have all the symptoms, and I am quite conscious and aware. But I have things that are helping distract me: Talking about my imagination and my creativity, talking about the triggers for my panic attacks and my simple seizures, talking about comedy TV shows and powerful fiction books. Somehow it all is able to keep the major depression away, although it is a very intense fight. Sometimes I find myself weak and struggling, even physically, as thoughts of worthlessness and hopelessness, frustration and terror, pessimism and guilt all slam into me and my wall and my shell.
I suppose I could say I am happy. I feel happy.
But... what is happiness?
"Happiness is a mental or emotional state of well-being characterized by positive or pleasant emotions ranging from contentment to intense joy." Sure, I feel those things. However, there is a strong undercurrent of the exact opposite.
Brains, man. Brains are wild. Brains are weird. Brains are so complex. One day, I want to have an MRI and see exactly what my brain is doing. I want to sit with multiple brain specialists for hours on end, and just... talk. I want to talk about my brain.
Brains, man.
brightlotusmoon: (Snow White Blood Red Light)
It was 1:40 in the afternoon by the time I finished this post; I began at 1:09.
I woke up at 11:30 only because my husband roused me and put a can of energy drink to my lips while helping me lift my upper body, right before my cat Rose sat on me and licked my whole face, until I managed to fall carefully off the edge of the bed, hobble to the bathroom, and take a hot shower while leaning against the wall. Wrapping my hair in a towel at least helped stretch my neck and shoulder muscles. I stumbled back to the bedroom, got partially dressed, swallowed my morning drugs and supplements (Trileptal, Klonopin, Ultram, Picamilon, L-Tyrosine, Guarana, Hyaluronic Acid, Ashwagandha, Devil's Claw, DMAE, Raspberry Ketones, Sea Buckthorn) with coffee (made with cocoa, milk, cocoa, sugar, and cocoa). I got fully dressed fell onto the bed, struggled back upright, performed very gentle exercises reminiscent of certain basic yoga poses with extreme modifications, pulled some muscles in my lower back, applied heat massage, complained to my cats out loud since they couldn't tell me that my only limits were mental, bad attitudes, set by myself, because my cats loved me without telling me how to do things.
And so now I am sitting at my work desk with my cocoa coffee, Futurama via the Roku box on my 20 inch flat screen TV, the fish tank full of happy serene fish doing happy serene fish things. The codeine and baclofen I just took have taken effect, and I feel human. You know what it's like to not feel human, or normal, or easy, right, internet? Are you sure? Because I see so many articles about how easy it is to break limits, or not even have limits by - get this, ha ha - pretending you don't have limits. I just wanted to show you what my days are like. Because it's going to continue. Soon, I'm going to take afternoon supplements (MSM, Biotin, Inositol, Noni, Mangosteen, Goji, Pau D'Arco, Shilajit, NAC, and the drug Soma - and if you worry that I take too many pills in a day, I am going to laugh very loudly and point to all the people who take even more pills, by which I mean prescription pharmaceuticals alone because supplements don't work for them).
And then I will gently exercise some more, and have I mentioned that through all this I write and edit fiction stories, that novel I sent to a major publisher and agent, blog posts, and long discussions with beloved online friends? And I will read three books at once, maybe four, bit by bit, and since my husband is actually home from work I will spend time with him. And then in the evening, I will take my nightly medicine (Ogestrel-Hi, Trileptal, Zoloft, Soma, Apple Pectin Fiber, Chia Seed, Passion Flower), and crawl into bed like a bruised person, hopefully make fantastic love with my husband and have a wonderful, pain-relieving orgasm or four that will help me sleep blissfully (because sometimes it hurts too much to have sex but I do it anyway because it counts as medicine). And then I will wake up, either to see my husband off to work or to rouse myself, probably not until after 10:00 AM or so, and it will all continue, probably with additional errands and house chores.

There it is, internet. You have now seen my daily disabled life. I got lucky when I was approved for SSDI in 2012; I am lucky that I get enough monthly payments to keep me going alongside my husband who works himself bruised. I am lucky that all my limbs actually work, even if they hurt constantly in various ways. I am lucky that I haven't been to a hospital since 2007, and that was for a concussion and seizure. I have a lot of luck on my side. I also have a lot of limits. So, dear internet, please do not tell me what I should do with my limits unless you mean to help me move those limits a little higher so I don't need to push, I just need to move up more. Pushing my limits is fine, but I would rather move those limits up more so I have more room to go before I run up against those limits again.

Ah - I forgot to add that on the days when depression and anxiety attack, I am often physically unable to do much for several hours. But nobody needs to hear about that. Clinical depression is still stigmatized so severely that I still feel very uncomfortable discussing it. Also, I didn't mention the tiny complex moments when the cerebral palsy trips me up in many ways, because that would take forever. And I didn't mention the specifics of epilepsy, or fibromyalgia, or any neurological and neuropsychological conditions like ADHD Inattentive and OCD and Dyscalculia. Nor did I mention the specifics of fibromyalgia or various nerve issues, because who cares? That's boring. But it is all there.

Also, for those wondering why I take raspberry ketones, which have been touted as some sort of weird weight loss miracle:
http://ezinearticles.com/?Raspberry-Ketones---6-Health-Benefits-Of-This-Natural-Remedy-Now-Revealed&id=6875845
They are actually highly antioxidant, a brain tonic, an anti-inflammatory, slightly analgesic, full of good omega fatty acids, and good for digestive health, with some research showing that it can slow cellular aging.

And I didn't mention the daily skin moisturizing. If I don't apply specific healing oils and extracts to my face, neck, chest, hands, arms, and legs... it's not a happy day.
http://www.etsy.com/listing/99942639/sale-41-marshmallow-and-manuka-soothing
http://www.etsy.com/listing/84293185/2in1-manuka-honey-amazonian-body-butter
http://absilk.com/ssbodylotion.html
http://absilk.com/extremecream.html
http://www.etsy.com/listing/111067887/beauty-by-brazil-all-natural-amazon
https://store.abbeystclare.com/skin-care/rice-olives-cleansing-and-facial-serum-amazing-skin-treatment-melts-away-eye-makeup.html
http://www.skinactives.com/EMUlator-Oil.html
http://sweetsationtherapy.com/item_339/LumiEssence-Body-Organic-Advanced-Brightening-Repair-Treatment-with-Kojic-Acid-Arbutin-Vitamin-C-5oz.htm
brightlotusmoon: (Snow White Blood Red Dragon Witch)
So, until I see a full end to these violent migraines, brain pains, and flares of fibromyalgia, sciatica, chondromalacia patella, knee arthritis, ulnar nerve entrapment, hypertonia spasticity with hemiparesis, hemiparetic ghost sensations, itching, shaking, hay fever, exhaustion, true muscle weakness, and hypersensitivity... I will be pretending like all hell to be a normal ordinary human. Nothing to see here, nope, move along...

What with husband working a computer trade show job in Manhattan for the next couple of days, my sweet Charlotte will be coming over every day to help me work on organizing the rest of the house. Gods know I will need such help.

Also, I have a plush red fox and a plush gray wolf to cuddle, and my darling Serenity the Pony to whisper to, kiss on the lotus bud blaze mark on her forehead, brush her long long hair with a boar brush and wood comb.

And naturally, there is my wonderful balance of pharmaceutical pills and supplement pills.
Klonopin, Codeine, Ultram, Soma. Ashwagandha, MSM, Yerba Mate, Devil's Claw, Raspberry Ketones, Mangosteen, Moringa, Goji.
brightlotusmoon: (Snow White Blood Red Dragon Witch)
You know... between strangers still insisting that they know better than me and my doctors about my medications and disorders and this new bizarre, creepy, fucked up conspiracy theory about actress Angelina Jolie, I think I need to put up all my psychic shields whenever I am on Facebook.

(Quick note: I once met Ms. Jolie with Mr. Pitt, very very briefly, in Washington DC, last year. I never told anyone, because who cares? She's just a person. Angelina was very beautiful, very sweet, very kind. Brad was compassionate and funny. And now, I am reading about conspiracy theories regarding her "glorifying expensive self-mutilation through the guise of pretending she wants to avoid getting cancer" and because her doctors scammed her with the "lie" that she was at high risk. And because she has the money to afford a double mastectomy and ovary removal, and because she has gone public after the first surgery, she obviously wants to spread her horrible ideas to poor mortal women who have those genes that might cause cancer in their futures, because she was lied to by this pharmaceutical company and thinks it will help women.
This conspiracy theory is so sickening that I cannot even talk to the friends who believe it. They believe it so deeply that nothing will change their minds, the same way they believe that all vaccines cause diseases and autism. I love these friends. I can still be friends with them. But I cannot speak to them about any of this. They make me want to cry and retch.)

In the meantime, the carisoprodol (Soma) and acetaminophen-codeine #3 have been working very, very well, making me highly relieved. Of course, since pharmaceuticals are poison according to some people, I am obviously destroying myself from the inside. But at least I feel better.
And then there are the supplements that are supposed to be quackery, false, hocus pocus. MSM, Hyaluronic Acid, Biotin, Devil's Claw, Alpha Lipoic Acid, Pau D'Arco, Chlorella, Shilajit, AShwagandha, Goji Berry. They are also making me feel better.

I'm so sorry to harp on all this again. But I cannot walk away from these verbal assaults. I keep trying. I just want people to leave me to my own health knowledge. I am leaving them to theirs.
brightlotusmoon: (Snow White Blood Red Dragon Witch)
So, recently I have been doing these very specific limb stretches that were taught to me by my childhood physical therapists to loosen me up, since the cerebral palsy was extreme when I was a kid - I mean, for mild CP, you know?
But today has been a particular hell on my body. And no matter how long and often I stretched, nothing actually helped... until I took a combination of baclofen, tramadol, magnesium, skullcap, vitamin D, and vitamin C. Then it got better.
I was casually chatting with an old acquaintance and I mentioned what I was doing. The acquaintance immediately lambasted me for "giving in to evil Big Pharma and holistic quackery" and "being brainwashed into thinking those poison and placebo drugs help" (actual quote).
After I picked myself up off the floor and finished laughing and wiping away tears after more laughter, I typed, "Aww, sweetie! Thanks for looking out for me. It's so nice to know I'm loved! Anyway, I gotta go take my nightly seizure drugs and antidepressants and birth control pills and relaxing supplements. You know, because I am a member of the League of Evil Pill Taking Citizens. Don't tell anyone, but we're going to take over the world by treating our chronic illnesses with drugs and supplements until we feel better, and we're going to tell other patients what we're doing so they can make informed decisions for themselves. I can't give you specifics or I'd have to kill you. I've already said too much. Uh oh, my superiors are messaging me. Gotta go!"
I closed the chat window and signed out, and so far he hasn't replied. I'm currently coming up with a better, sillier name for this League. Just to fuck with him. I know I shouldn't, because it's cruel. But seriously. Whut. LOL.
Back to stretching. It hurts, but in a really good way, you know? Ahhhh, stretching! Also, the stretching brings back some amazing childhood memories. I remember being in a room with a blue floor, trying to manipulate tiny plastic figurines with my left hand while rolling on one of those huge exercise balls. When I was little, I called it torture. Now, I want one of those huge balls in my writing room to work out with.
brightlotusmoon: (Snow White Blood Red Dragon Witch)
I often "cross post" between here and Facebook, since sometimes stuff I say there, in increments, can be transferred here as stories and ruminations.

Lately, I've been getting genuinely angry at many Facebook friends and acquaintances - and it takes a fucking lot to make me genuinely angry. Multiple people on my Feed have been reading and watching the internet and talk show versions of medical conspiracy theories and tabloids - technincally slightly true, definitely not completely true. "So, these doctors on this daytime talk show or YouTube segment or extremely biased blog are saying that almost every serious health problem in America can be linked to pharmaceutical drugs or the side effects from those drugs. So, have fun taking those deadly dangerous pills! I'm going to be all smug and condescending because I don't take any pills at all even though I probably should for medical conditions I refuse to talk about."

Have you ever had a triggering of your rage gag reflex? Not quite retching, but a mental version of "I am about to explode rage all over this!" because something has truly, severely pissed you off. That has been me over the last couple of days. Some very very intelligent friends have been reposting these ridiculous claims, and my response is usually double facepalm and "For fuck's sake, take everything you read and hear on these blogs and talk shows with grains of salt, please, please, please." Like... okay, I like watching the Doctor Oz show every now and then. Quite often, he is extremely insightful, helpful, and correct. But he is also trying to get high ratings. Same for that talk show The Doctors. Who also used to be Oprah's friends. A panel of four core doctors from different specialties talking about medical breakthroughs, things that are good and bad for you, et cetera. Apparently, a recent episode featured the ER physician claiming that pharmaceutical drug side effects were causing most of the country's medical problems. At which point I facepalmed, went online to trusted websites, and proved him essentially wrong with a few keystrokes. It turns out that after the episode aired, multiple physicians and specialists who were not mere ER doctors called bullshit and blasted the episode and the hosts for being irresponsible. Again, ratings ratings ratings. But so many Facebook friends are falling for it that I wound up "hiding" their posts because I was getting seriously insulted. Funny that this happened after I made a status post about how grateful I was for the pharmaceutical drugs I've been taking to help mitigate my conditions.

Look, pharmaceutical drugs are not the Best Things Ever. They have serious side effects for many people. They alter the body and brain in ways that can be more damaging than the conditions they are treating. BUT. For millions of people, they are lifesaving. They have treated the symptoms of thousands of crippling diseases successfully. For many patients, they are the only options, because holistic medicines, supplements, and alternative therapies haven't worked for those patients (and of course, holistic medicine is either The Best Only Medicine Ever or Quackery Placebo Bullshit). So, to say something like "I heard from a TV doctor that pharmaceutical drugs are the main cause of most medical problems" and to follow it up with a slap in the face like "Good luck taking your pills, guys!" is... a slap in the face. Especially if that doctor was being paid to exaggerate findings or to promote some sort of media, to gain readers or viewers. And especially if the people repeating these claims hadn't seen a doctor themselves in years due to lack of opportunity, fear, hatred, or simple mistrust of doctors - which makes me laugh my ass off. "I don't trust doctors, doctors have never made me feel better, but this one doctor said this thing and I believe it completely and so should you!" It is one thing to drink the Kool-Aid. It is another thing to splash the plastic cup of Kool-Aid in my face.

You know, this is why doctors practice medicine. Practice, not master. It is a practice. Many many times, they get things wrong. Doctors are not perfect. Nobody is perfect. Not even you. So, dear Facebook people, please double check your facts, get second opinions, and actually think about it before you quote what sounds like medical conspiracy theories.

In the meantime, I'm going to sit back, smile, watch silly cat videos, and take my evil pharmaceuticals and my quack herbal supplements that are all maliciously working wonderfully to effectively relieve the worst symptoms of my twenty separate medical conditions. Damn them! *nods*

Also, in May I have my first appointment with a licensed craniosacral therapist. Having had craniosacral therapy twice, with extraordinary results, I am eagerly anticipating this.
brightlotusmoon: (Snow White Blood Red Dragon Witch)
https://www.change.org/petitions/chairman-murphy-and-ranking-member-degette-stop-threatening-the-hipaa-rights-of-people-with-psychiatric-disabilities
To quote a dear friend:
"I am a fully-functioning human being, mentally ill people pose NO greater threat to society than non-mentally-ill people, and we are entitled to exactly the same protections as every other person. Do not discuss these issues without allowing mentally ill people to educate you. Do not discuss these issues until and unless you are aware that mentally ill people are more likely to be the VICTIMS of violence than the perpetrators. Inform yourselves and actually talk to the people involved. Don't bring your own preconceived ideas to the table, call them fact, and suggest policy based on them. That's inhumane AND unlawful."

And I would like to add:
There are very different types of crazy. What I call Hollywood Crazy or Hollywood Mental Illness is usually the kind that is an exaggerated version of a disorder that is seen as a danger to oneself and others. There are people out there so terrified of this that even if they are mentally ill, they will refuse to say anything because ignorant family members might see them as Hollywood Crazy (see: "I am not crazy! I have never been crazy! Don't call me crazy!" often intoned with an air of fear, upset, prejudice.) And in those minds, Hollywood Crazy might mean commitment to a ward or facility, which is often seen as a terrible thing, not a helpful healing thing. We seriously need to change how we view mental illness and mental disability. There are so many people living with a form of mental illness who absolutely refuse any sort of treatment purely out of fear of ridicule, shunning, disconnection from family, even forced unnecessary commitment to hospitals. We need to show them that the stigma is human, driven by fear that breeds hate, and that there is no shame or fear in getting some sort of treatment.

***

Dear pharmaceutical drugs: I know people hate you and think you are poison, but I just wanted to tell you that I greatly appreciate your role in saving my life.
I will always balance you with holistic remedies, allopathic medicine, and whole body treatments. But I will always be grateful for the way you have helped me feel better, and even normal, under certain standards. I am one of those people who rarely experience the various side effects listed - which really, are simply issues reported by test patients during trials, which may or may not actually affect anyone. It took me years to realize that. After all, many, many pharmaceutical drugs were initially derived and synthesized from plants, foods, and botanicals. I am not sure about recent years, but chemistry is chemistry.
I do not participate in the stigma and hate toward you. Of course, I am only speaking for myself and my personal experiences. I know so many people who really have been poisoned and "screwed up" because their chemistry reacted very badly to certain medicines, causing extreme side effects that led to even worse conditions. I cannot speak for them. But I can speak for me. And all I can do is be grateful.
One day, I will taper down until I need only very small dosages of the drugs I am taking. That may be years from now. I will still need to take certain drugs for the rest of my life However, for the time being, I am perfectly fine with the pills I take. I cannot say that for anyone else - I am not anyone else.
I am always sad when I learn that so many other patients cannot handle certain medications or become worse due to negative side effects - that is horrific.
Yet as long as no one tries to convince me personally that my life would be better if I quit all my essential medications, I will nod and agree that we take too many prescriptions as a whole, and that negative side effects can be absolutely terrifying and can lead to worse problems. I wish there were more patients like me, who are are able to handle drugs without intense side effects.
And now I shall take the supplements that I take daily, to help balance the pharmaceuticals. Because the supplements work for me. And that is a completely separate debate for another post.

Oh, hell, might as well do that post now.
Depending on who you talk to, supplements and holistic medicine and alternative remedies are either the best thing and the only thing, or absolute bullshit and placebos. And then there are those who regard supplements as exactly that - supplemental. Alternative. Balancing. No big deal.
I grew up on vitamins and supplements, only being given pharmaceuticals when necessary. Now that I need to take over half a dozen pharmaceutical pills daily, I balance them as best I can with vitamins and supplements.
There are plenty of sick patients who are physically unable to take supplements and alternative treatments, as their bodies and brains completely reject or don't respond at all to said medicines. Which is why I bristle whenever someone insists that pharmaceuticals are all poison and only supplements and natural medicines are the way to treat illness. Nobody is the same. Everybody is different. What works for me may not work for you. People don't seem to understand this. People may never understand this.

And here, I submit a full list of every single diagnosis ever made in my life, and here I submit a full list of pharmaceutical medications and supplemental medicines, stored in both my Facebook Notes section and a document in Word.

Read more... )

And now, time for the daily supplements that I take daily because they work for me.
brightlotusmoon: (Snow White Blood Red 3)
I'm leaving this here just so I remember.
http://tvtropes.org/pmwiki/pmwiki.php/WesternAnimation/Futurama?from=Main.Futurama

Also, this:
Benefits and Healing properties of Baltic Amber:
*Alleviates pain and symptoms associated with teething
*Reduces arthritis pain
*Reduces and prevents migraine headaches
*Reduces acid reflux, heartburn
*Reduces and eliminates eczema, psoriasis, and acne
*Balances digestive system and GI tract
*Improves sleep cycles
*Lifts overall mood and feelings of depression
*Amber prevents the aging of human cells, which use succinic acid as an inhibitor (an agent slowing down or totally stopping the loss of) of potassium ions and an antioxidant.
*Amber changes ionization, positively influencing our frame of mind and rebuilding the disturbed electrostatic field due to electrical devices which affect our organisms.
*There are so many ways in which you can benefit from Baltic amber. It has a substance – or ingredient – called succinic acid. A powerful antioxidant that helps fight toxic free radicals and disruptions of the cardiac rhythm, succinic acid has been shown to stimulate neural system recovery and bolster the immune system, and help compensate for energy drain in the body and brain, boosting awareness, concentration and reflexes, and reducing stress.

The magical things 3 mg Klonopin can do when combined with 350 mg Soma.
My almost nervous breakdown, and my hypertonic insanity, has eased considerably.
You see. Apparently, a Thing may be happening that has me more terrified than excited when I should be insanely happy and excited.
And in the meantime, I have to finish something that has eluded me for a very long time, which I cannot seem to convey to anyone without frustration.
So, Klonopin and desperation it is.

If you are a published writer, especially regarding urban fantasy or science fantasy, please please message me privately. Particularly if you have written novels and novellas.

I am writing the final chapter of the novel, just to see if I can fill things in and tie things up. Oh, I hope this works.

Note to self: Sale at CVS.
brightlotusmoon: (Snow White Makeup)
Okay.
Okay.
I'm... oh, hell, what is just under "okay" but not near "bad" or "poor"? Medication and meditation have both helped immensely. Cuddling with spouse and cats has helped immensely. I was laughing. Except there was still that Dark Nope in my mind, flattening me and reminding me that darkness was everywhere in my brain right now. There is absolutely no point in pasting on a smile and ignoring the depression, because fuck it, there it is, and it will end when the episode ends. See? Clinical major depression is an entity, and it will leave when it is ready. It can be coerced, cajoled, enticed, forced and tortured. But sparkly thoughts are not a treatment. I have not and do not live any part of my life by the so-called "The Secret" book suggestions. Nice idea though.
I have been envisioning things that relax me, entertain me, and amuse me, of course.
Best to take my pills with something decent in my stomach - milk in coffee, juice, yogurt. Followed by a full meal. I just have no feeling for an appetite. It's not a rejection of food, it's just a lack of feeling hungry. I ate half a burger with sliced cheese and yuk choy vegetable dip, washed down with thick acai pomegranate juice. It was plenty.
I just feel empty, dark, slow, neutral. That is it. Neutral. Shrug. Whatever. Okay. I don't mind. "I have no strong feelings one way or the other." (Hah! I knew I'd find a way to quote that line soon.) I don't really want to go anywhere particularly to anyone else's houses and couches. If I were to move, it would to go walking, shopping, moving for exercises. I'm just a cat. If someone wants to hang out with me, they had better enjoy sitting on a couch, reading books and watching TV and browsing online. With the occasional discussion about physics and neuroscience and maybe fandoms.
See, here's the tricky part: Depression is a great pretender. It can put on a perfect mask. It can smile, laugh, and interact with the best of them. That is what viruses do. It can move me, control me, make me do whatever it needs me to do while it quietly spreads across all my nervous system and tweaks each little neuron so that gradually it overcomes its host and becomes a best friend. Creepy, isn't it?
But I will know. I have been learning. That is part of my library magic, my moonlight magic. I am just as sneaky. I have weapons. I can sneak into the main consoles and screw with the auxiliary systems before I even start working on tampering the primary systems. Sometimes I get caught and I get locked up and I even get tortured. But usually it is worth it.
In conclusion... I will be okay. For now, I am that thing just below "okay" which is nebulous.
Nebulas are pretty.
I've been watching too much Star Trek. I don't even care.
brightlotusmoon: (Snow White Makeup)
Yeah, I think I'm starting to slip into a depressive episode.
I just want to stop reacting whenever anyone insults me in any way.
I feel like crying over... I don't know, nothing and everything.
That is why watching Futurama and My Little Pony Friendship Is Magic is comforting, so shut up.
I want people to stop telling me how to be or not be physically and mentally disabled, bisexual, ethically Jewish, eclectic pagan, psychically sensitive, a female, very short, curvy slender, balanced between holistic and pharmaceutical medicines, a writer, a reader, an intellectual, a human.
I want to remind myself how to ignore those people and live my life my own way no matter who says what. I want to stop reacting and overreacting. I want to remind myself to just shut up and walk away with the knowledge that they will not learn nor understand, but others will.
I want to learn how to actually make and keep more friends on my own without wanting to run away.
I want to squeeze all my toys and dolls and meditate and cry cleansing tears.
I just want to be.
brightlotusmoon: (Peaceful Dragon Model 2)
Links to my newest favorite supplement, which is actually a drug in Europe, and is actually effective in crossing the blood brain barrier. Also, posted here so I remember.

http://www.lef.org/prod_hp/abstracts/picamilon.htm
http://www.lef.org/magazine/mag97/july-lbn297.htm

Also, thank you, Baclofen, for making it easier on my muscles tonight.
brightlotusmoon: (Default)
Good things: Taking 20,000 mcg (20 mg) of Biotin at once every day really does help with healthy hair and nail growth for me. Not necessarily longer growth, just better, healthier, stronger, shinier growth, which will in itself help with longer growth in the long run, and I did not mean to sound like a commercial, sorry.
(Disclaimer: I do this for myself because it works for me. If you want to try it, have fun, just do your research. Although, Biotin - aka B7 and BH - really is an awesome vitamin and gives me lots of anti-fatigue energy and helps lift my depression slightly.)

Also, NAC, N-Acetyl-Cysteine. Good for boosting my energy levels and such. And I was recently told it may work as a supplement for OCD, ADD/ADHD, mild depression, anxiety, bipolar, respiratory problems, and memory problems.
(Disclaimer: I do this for myself because it works for me. If you want to try it, have fun, just do your research.)

It is very important to put disclaimers on every supplement and holistic treatment. Because they do not always work for people. Some may not work at all. But I will only talk about stuff that works for me. If other people want to try it, they are free to do so, and I'm happy to answer questions, but I will never be one of those "holistic proselytizers" who insists that everything is awesome. I'm still not sure about the whole "water homeopathy" even though I take homeopathic tablets like arnica and ignatia in tablet form all the time and they work wonderfully, so I'll say I like homeopathy in non-liquid form, I guess, I don't know, I just know something works. Anyway, every body is different always all the time forever so nobody make fun, please.
brightlotusmoon: (Pixie Model 1)
I forgot to take the morning Ultram and Soma before we went to Adam's doctor check up appointment and it was raining and my rhinitis was flaring and my knees were aching stabbily and blah blah blah everything was horrible. But we got our flu shots and there was a CVS Extra Bucks coupon for 18.50 when I scanned my card, so we got a bunch of stuff and saved a bunch.
And when we got home, I went upstairs and prepared to sit on my couch and turn on my laptop, which meant I rapidly got a Luna in my lap kissing me and purring, as usual, which happens every time I sit down at my laptop on my couch; it's almost Pavlovian. OMG, Mama is going to the couch! Run run run! Jump on the lap! Get hugs! Yay!
Cats are fun.
Every time I marathon 'Futurama' I feel better. I'm not sure why. Actually I am sure why, but you don't need to know, because I'm always watching that damn show and you don't need to hear about it.
I have so, so, so many books to finish reading. I shall begin that forthwith. The painkillers have been actively and nicely painkilling since four this afternoon.
Also, I have weird pains in my right abdominal area near the bladder and surrounding muscles, so I am on a UTI watch and taking cranberry juice and extra extra ascorbic acid. So far, so good. But things happen. It is most likely just fibromyalgia being a bitch, plus gas bubbles, since I've been belching all day and the pain feels slightly better after each belch, but the spot is still tender and annoyingly stabby.

I have no idea why, but I love the shit out of this Wikipedia explanation.
http://en.wikipedia.org/wiki/Speculative_fiction
brightlotusmoon: (Default)
Also, I have an Ace bandage wrapped around my left wrist, arm, and hand because OMG PAIN leaving me sobbing wildly. It is mostly likely from repetitive strain injuries, because in the last few days I have been using my left hand more and more in ways it is not used to. Tonight will be a codeine with acetaminophen night.

The alarm has been set for eight and we plan on leaving around nine, so I must be refreshed as must as possible. I will fall asleep in the car anyway. That always happens. In my purse will be my trusty travel pill container and a small bottle of water. And of course there will be rest stops for snacks and restroom breaks.

I am very excited. And for once, I don't have anxiety that could affect my digestive system or any other part of my body. Thank you, Klonopin, Ultram, and Baclofen, which I did not have the last time I accompanied Adam on a long car trip. I think being so calm, relaxed, and in far less pain goes a long, long way. Because wow.
Anyone who wants to label Big Pharma as pure evil can do so, just not to my face right now. I am way too satisfied to make any arguments beyond "These drugs are helping me immensely and I am profoundly grateful. End of discussion." Of course, I will have my necessary supplements of herbs, vitamins, extracts, and compounds. I always do. Balance and harmony in everything.
I am feeling very balanced and harmonious. Yay. Peace out, all.
brightlotusmoon: (Default)
To paraphrase a rather obscure Futurama quote:

I should be sleeping. I'm not sleeping!!

*sounds of leather whipping and Zoidberg whooping*

Some days I truly do feel like Bender. Other days I'm a blend of Amy, Fry, Zoidberg, Kif, Scruffy, Nibbler, Hedonismbot, and Al Gore's Head.

Time for deep transcendental meditation and valerian. And possibly Flexeril and Klonopin, depending. Last night's anxiety attack was really really... not good. Mild insomnia combined with major anxiety is... bad brain, no smart-making. Brain did not brain nicely at all. Brain had better brain better tomorrow.
brightlotusmoon: (Default)
Let's see.
Coffee, protein fruit smoothie, amazing yoga pants from Rugged Warehouse, comfy bra by Barely Breezies, massive pain drugs, brain sickness drugs, athletic socks, big librarian glasses, best couch in the world, cuddly cats, Netflix via PS3 on a 52-inch wall mounted flat screen TV, novel up and running, story outlines writing themselves, migraine weakly gasping for sustenance, me laughing sadistically.
This is a good Sunday.
Later, I will finish reading "Emperor Mollusk Versus The Sinister Brain" by A. Lee Martinez and then "Trance" by Kelly Meding, and then call my therapist to discuss some stupid OCD compulsions.
Oh, and also, I spent a few glorious minutes on the phone with the wonderful Rose with her sweet Celtic pixie princess voice, while she compared my voice to deeply rich wine-soaked chocolate cake. Speaking to friends is of course always an incredible mood lifter.
I still feel a shadow of depression, which is unfortunately dulling me so much that I need a mask to talk to family. But at least I have that sweet close relationship with my family, even though my mother is way too good at sensing my masks.
Also, I shall practice some magic healing self massage with a touch of physics and see how far that gets me.

They say social networking is all about chronicling our lives in increments that may or may not interest other people, so here is mine, condensed into a cube of thoughts and actions. Enjoy, I guess. <3

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